Category Archives: Patient & Carer Support Group

Living Well With Mesothelioma meeting 14th May 2018

The next meeting of the Living Well With Mesothelioma support group is at 1.30pm on Monday 14th May 2018 in the Lincoln 1 room at Methodist Central Hall (Oldham St, Manchester, M1 1JQ).

Dr Paul Taylor will be giving an update on clinical trials, and we will also be holding the ‘Muffins For Meso’ bake-off.

The Living Well With Mesothelioma support group is for people with mesothelioma and those who care for them. For more information please ring 0161 636 7555.

£176.25 raised for Living Well With Mesothelioma group

Many thanks to everyone who kindly sponsored Rob Rayner to give up booze for Lent. The last day of Lent is today, Rob has not touched a drop, and £176.25 has been raised for the Living Well With Mesothelioma support group. Thank you to everyone who donated!

Living Well With Mesothelioma meeting Monday 9th April 2018

The next meeting of the Living Well With Mesothelioma support group is at 1.30pm on Monday 9th April 2018 in the Lincoln 1 room at Methodist Central Hall (Oldham St, Manchester, M1 1JQ).

Mavis & Ray Nye will be talking about the Mavis Nye Foundation and the book ‘Meso Warriors’.

The Living Well With Mesothelioma support group is for people with mesothelioma and those who care for them. For more information please ring 0161 636 7555.

Living Well With Mesothelioma meeting Monday 5th March 2018

The Living Well With Mesothelioma support group will be meeting at 1.30pm on Monday 5th March 2018 at Methodist Central Hall (Oldham St, M1 1JQ).

Peter Smith will be talking about the role of the physiotherapist, and what physiotherapy can offer to people with mesothelioma.

The Living Well With Mesothelioma support group is for people with mesothelioma and those who care for them. For more information please ring 0161 636 7555.

Please donate, if you can!

Rob Rayner has (reluctantly) agreed to give up booze for Lent, to raise money for the running of the Living Well With Mesothelioma support group. To help Rob with his challenge, and to help support this invaluable service for mesothelioma sufferers, please click here.

Living Well With Mesothelioma meeting Monday 5th February

The Living Well With Mesothelioma support group will be meeting at 1.30pm on Monday 5th February at Methodist Central Hall (Oldham St, M1 1JQ).

The Living Well With Mesothelioma support group is for people with mesothelioma and those who care for them. For more information please ring 0161 636 7555.

Living Well With Mesothelioma meeting 8th January

The Living Well With Mesothelioma support group will be meeting at 1.30pm on Monday 8th January at Methodist Central Hall (Oldham St, M1 1JQ).

The meeting will be addressed by Sue Jackson, a pleural nurse practitioner from Wythenshawe Hospital.

The Living Well With Mesothelioma support group is for people with mesothelioma and those who care for them. For more information please ring 0161 636 7555.

Living Well with Mesothelioma Xmas lunch

This year’s Xmas lunch for the Living Well with Mesothelioma Support Group was held in the Lancaster Room at Manchester’s iconic Midland Hotel on 6th December. Thanks to all who came and made it such an enjoyable afternoon.

 

Living Well with Mesothelioma Group meetings 2017

Details of the next 6 meetings have now been published.

7 August 2017. No meeting. Group outing—Castlefield Canal Cruise. Please ring us if you are interested in attending.

4 September 2017. “Addressing patient and carer’s needs—it’s good to talk.”

2 October 2017. “A spoonful of sugar”. Julie Whitehead. Macmillan Pharmacist, Chesterfield Royal Hospital.

6 November 2017. “The Role of the Pleural Nurse”. Sue Jackson, Pleural Nurse Practitioner, University Hospital South Manchester.

4 December 2017. “Mindfullness”. Ann Burgoyne. Macmillan Living Well Service Lead Practitioner, Blyth House Hospice, Chapel en le Frith.

8 January 2018 (NO MEETING ON 1 JANUARY). “What services/support are available in your area?” Mairead Dixon. Senior Mesothelioma Clinical Nurse Specialist, University Hospital South Manchester.

Please note, we will not be having a meeting on 7 August as this is the date of the group’s summer outing. We will be having lunch and cruising the canals around Manchester on a barge. It is not too late to sign up for this trip if you are interested. Ring us on 0161 636 7555 if you would like to join us.

Living Well with Mesothelioma Support Group – 1.30 – 3.30 pm Monday 8th May

This month’s meeting is being held on May 8th (second Monday of the month) because of the bank holiday. As usual we will meet in the Collier Room, Methodist Central Hall, Oldham Street, Manchester M1 1JQ. These meetings are open to all people living with mesothelioma, carers and family members.

Our speaker this month is Alessandro Pugno, a film-maker and member of AFEVA, the Italian national asbestos victims group. Alessandro was born and raised in a small town called Casale Monferrato. The main employer in this town was a company called Eternit, a giant multi-national asbestos company. Because of the activities of this company, thousands of people from this small town have developed mesothelioma and other asbestos diseases, including many who never worked at the factory who were exposed to asbestos fibres in the environment and from their loved ones’ workclothes.                                                     

Local people have fought for years for justice and restitution. Company directors have been prosecuted but have so far wriggled free on technicalities. Similar campaigns have been waged against Eternit in Belgium, Switzerland, France and Asia. Campaigners have vowed to continue the campaign until the perpetrators have been brought to justice.

This is an inspiring story and will be a good meeting so we hope people can make it.